LES TNE

Articles

Voici les principaux liens vers des articles (en anglais) et des sites web traitant des TNE.

Hoofing it raised $80,000 for Neuroendocrine cancer research in Canada – INCA – Septembre 2020

Get ready for the NET cancer day 2020 – INCA – Septembre 2020

Patient reported outcomes measurement discussed in the INCA Boot Camp – INCA – Septembre 2020

NCUK launches new website – INCA – Septembre 2020

Swedish drug start gives shares to its donor – Victory Net Foundation – INCA – Aout 2020

Medical statistics explained in the INCA Boot Camp August session – INCA – Aout 2020

CCF Luncheon with the experts – Facebook live event with Catherine Bouvier – INCA – Juillet 2020

INCA Boot Camp for research Advocates – July Session – INCA – Juillet 2020

NETRF (Neuroendocrine Tumor Research Foundation) reports progress in fight against nets – INCA – Juillet 2020

INCA bootcamp launched – INCA – Juin 2020

Discover the lung neuroendocrine booklet by NCUK – INCA – Juin 2020

SAVE THE DATE – World NET lives conference in September – INCA – Juin 2020

SAVE THE DATE – ENETS will host a series of conversations with NET experts in webinars on June 11th, 2020  – ENETS – Juin 2020

First ENETS Centre of Excellence in Spain – INCA – Juin 2020

UNICORN Foundation New Zealand welcomes new CEO – INCA – Juin 2020

NET patient will hike the hardest trails in France to raise funds for NET research – INCA – Juin 2020

AMEND launches SDH Syndromes Films – INCA – Mai 2020

INCA article on Unmet needs in IJC – INCA – International Neuroendocrine Cancer Alliance – Mai 2020

Milestone achievements announced in NET cell line development – NETRF – Neuroendocrine Tumor Research Foundation – Mars 2020

COVID-19 : Informations pour les patients souffrant de TNE

Information on the coronavirus  – Universitätsspital Basel – avril 2020

Information ressources for NET patients – INCA – International Neuroendocrine Cancer Alliance – avril 2020

Informations sur le Coronavirus – CHUV – Centre hospitalier universitaire vaudois – avril 2020

COVID-19 – Information and ressources – Neuroendocrine Cancer Australia – 26 mars 2020

Coronavirus disease – Outbreak  – Neuroendocrine Tumor Research Foundation – 27 mars 2020

Coronavirus – Information page – AMEND – 26 mars 2020

Advice on Coronavirus for people with cancer – Net Patient Foundation – mars 2020

Coronavirus : personnes vulnérables – OFSP – OFSP – 20 mars 2020

Cancer Research UK – coronavirus and cancer – Cancer and Coronavirus – March 2020

Quality of Life: NETs – Why this master of disguise needs careful handling – Cancer World – Autumn 2019

L’hôpital universitaire d’Uppsala recherche des patients TNE pour son essai clinique. (Word)

Tributes paid to Tethys founder after losing rare cancer battle – Vince Hamilton

The Telegraph – A virus that kills cancer : the cure that’s waiting in the cold – Alexander Masters – August 31st, 2012

The Telegraph – Would I take an untested cancer treatment myself? Hell, yes! – Dominic Nutt – September 14th, 2012

The Telegraph – The cancer killer they won’t pay for – Alexander Masters – October 2nd, 2012

Financial Times – Scientists offer to name cancer drug for £1m – August 31, 2012

the Guardian – Two medical pioneers aim to trial a cancer-killing virus – Alexander Masters – January 4, 2013

Aeon Magazine – An iCure – Alexander Masters – March 27th, 2013

the Uppsala University – Donation enables clinical testing of new cancer treatment – June 15th, 2013

The Telegraph – Welcome back, Nick Robinson – Dominic Nutt – April 20th, 2015

The Telegraph – Can crowdfunding really cure cancer? – Alexander Masters – July 2nd, 2016

Financial Times – Vanity virus cures fund gap for medical research – Andrew Jack – March 11th, 2016

The Telegraph – It’s time to sell tickets for places on life-saving medical trials – Dominic Nutt – April 5th, 2016

The Carcinoid Cancer Foundation – Oncolytic virus Clinical Trial for NET Patients begins at UU – April 6th, 2016

SwissNET report (2016)

Journal of Medical Ethics – The Plutocratic Proposal – Alexander Masters and Dominic Nutt – June 6th, 2017

Net Patient Foundation – INCA – Unmet needs in the global NETs patient community – November 7th, 2017

www.liguecancer.ch
Informations, stages, séances, conseils et soutien (également pour les employeurs, pour les employés, coaching téléphonique ou sur place, formations/ateliers), brochures et matériel (notamment droits et obligations dans les relations de travail)

www.lgc.ch
Ligue genevoise contre le cancer – Espace Médiane : espace de dialogue (également documentations)

www.swissnet.net
Swissnet = Registre suisse des tumeurs neuroendocrines qui réunit les spécialistes de différentes disciplines

www.chuv.ch
Département d’oncologie, Cancer neuroendocrinien.  Probablement le prochain Centre d’Excellence des TNE en Suisse, après l’Hôpital Cantonal de Zürich.

www.hug-ge.ch
Hôpital Universitaire de Genève – Centre des cancers – Programme des tumeurs de la thyroïde et des tumeurs neuro-endocrines

www.kofam.ch
Portail qui recense les essais cliniques réalisés en Suisse. Pour p. 83

 

En France :

www.apted.fr
Association de Patients porteurs de tumeurs endocrines diverses.  Informations et documentations

www.tne-infos.fr
Site destiné à offrir des informations utiles et interactives aux personnes atteintes de TNE ainsi qu’à leur entourage.  Edité par Ipsen, contenu validé.

 

Au Canada :

https://cnetscanada.org
Société des tumeurs carcinoïdes-neuroendocrines du Canada

 

Et aussi

ENETS

https://www.enets.org/
https://www.enets.org/coe_map.html
ENETS – Centers of Excellence

https://www.enets.org/net_nurse_group.html
ENETS – NET Nurses group

http://incalliance.org/
International Neuroendocrine Cancer Alliance: INCA