NETs

Artikel

Hier finden Sie die wichtigsten Links zu Artikeln (englisch) und Webseiten zum Thema NET.

INCA BOOT CAMP :

Mona Hamilton, Victory NET Foundation: The Boot Camp gives a better understanding of the patient advocacy world – INCA – December 2020

Ron Hollander, INCA honorary member : I believe the time is ripe for us to work with all of the key stakeholders in NET research – INCA – December 2020

Mark McDonnell, Net Patient Network – Ireland : As patients, we need to work together to ensure our voices are heard and that we are involved and engaged in all stages of research – INCA – December 2020

Stephanie Alband, PheoPara Alliance: The INCA ALLIANCE Boot Camp provides us with practical tools to facilitate research in our patient community – INCA – October 2020

Michael Rosenberg, Founder, MENETS : 2020’s advocacy is becoming more a science and requires more than personal touch – INCA – October 2020

Mari Sandvold, CarciNor, Norway: What I really treasure is the opportunity to discuss with fellow NET-advocates around the world – INCA – October 2020

Evidence-based patient advocacy at the INCA Boot Camp – INCA – September 2020

Patient reported outcomes measurement discussed in the INCA Boot Camp – INCA – September 2020

Medical statistics explained in the INCA Boot Camp August session – INCA – August 2020

INCA Boot Camp for research Advocates – July Session – INCA – July 2020

INCA bootcamp launched – INCA – June 2020

2021

INCA ENETS Symposium will take place on 26 February at the 18th ENETS Virtual Annual Conference for the diagnosis and treatment of Neuroendocrine tumor disease – ENETS – January 2021

EntreTNEs is a podcast channel for people with a Neuroendocrine tumor to share their experiences, challenges, and needs. Initiative of Spanish Association of Patients with Neuroendocrine Tumors (NET Espana)– Entre TNEs – January 2021

COVID-19

CORONAVIRUS information page  – AMEND (EN)

CORONAVIRUS outbreak  – NETRF (EN)

Information on the coronavirus  – Universitätsspital Basel (DE, EN , FR)

Coronavirus: People at especially high risk – Federal Office of Public Health FOPH (EN, FR, DE, IT)

Coronavirus and cancer – Cancer Research UK (EN)

2020

MENETS released its NET Nutrition Ebook in Arabic and Hebrew  – MENETS – December 2020

Pheo Para announces launch of Center of Excellence program – Pheo Para – December 2020

NET Cancer Day 2020 Talks about early Diagnosis for NETS in 10 languages – NET Cancer Day – November 2020

NETRF podcast on Small Bowel NETS – NETRF NETwise podcast – November 2020

Prise en charge des TNE du rectum – Groupes d’étude des TNE – November 2020

NCUK virtual summit – 7-8 November, 2020 – INCA – November 2020

NET Cancer Day : speak up for an earlier diagnosis – INCA – October 2020

European Cancer Summit 2020, 18 & 19 November 2020, virtual edition – INCA – October 2020

Hoofing it raised $80,000 for Neuroendocrine cancer research in Canada – INCA – September 2020

Get ready for the NET cancer day 2020 – INCA – September 2020

NCUK launches new website – INCA – September 2020

Swedish drug start gives shares to its donor – Victory Net Foundation – INCA – August 2020

CCF Luncheon with the experts – Facebook live event with Catherine Bouvier – INCA – July 2020

NETRF (Neuroendocrine Tumor Research Foundation) reports progress in fight against nets – INCA – July 2020

Discover the lung neuroendocrine booklet by NCUK – INCA – June 2020

SAVE THE DATE – World NET lives conference in September – INCA – June 2020

SAVE THE DATE – ENETS will host a series of conversations with NET experts in webinars on June 11th, 2020  – ENETS – June 2020

First ENETS Centre of Excellence in Spain – INCA – June 2020

UNICORN Foundation New Zealand welcomes new CEO – INCA – June 2020

NET patient will hike the hardest trails in France to raise funds for NET research – INCA – June 2020

AMEND launches SDH Syndromes Films – INCA – May 2020

Unmet needs in IJC – INCA – International Neuroendocrine Cancer Alliance – May 2020

ENETS Center of Excellence patient survey – INCA – International Neuroendocrine Cancer Alliance – April 2020

Milestone achievements announced in NET cell line development – NETRF – Neuroendocrine Tumor Research Foundation – March 2020

COVID-19 : Informationen für Patienten mit neuroendokrinen Tumoren (NET)

Informationen zum coronavirus  – Universitätsspital Basel – April 2020

Information ressources for NET patients – INCA – International Neuroendocrine Cancer Alliance – April 2020

COVID-19 – Information and Ressources – Neuroendocrine Cancer Australia – 26 March 2020

Coronavirus disease – Outbreak  – Neuroendocrine Tumor Research Foundation – 27 March 2020

Coronavirus – Information page – AMEND – 26 March 2020

Advice on Coronavirus for people with cancer – Net Patient Foundation – March 2020

Neues Coronavirus: Besonders gefährdete Personen – Bundesamt für Gesundheit BAG – March 2020

Cancer Research UK – coronavirus and cancer – Cancer and Coronavirus – March 2020

2019

Quality of Life: NETs – Why this master of disguise needs careful handling – Cancer World – Autumn 2019

AdVince-Studie in Uppsala Gesucht: Krebspatienten mit neuroendokrinen Tumoren (Word)

The Telegraph – A virus that kills cancer : the cure that’s waiting in the cold – Alexander Masters – August 31st, 2012

The Telegraph – Would I take an untested cancer treatment myself? Hell, yes! – Dominic Nutt – September 14th, 2012

The Telegraph – The cancer killer they won’t pay for – Alexander Masters – October 2nd, 2012

Financial Times – Scientists offer to name cancer drug for £1m – August 31, 2012

the Guardian – Two medical pioneers aim to trial a cancer-killing virus – Alexander Masters – January 4, 2013

Aeon Magazine – An iCure – Alexander Masters – March 27th, 2013

the Uppsala University – Donation enables clinical testing of new cancer treatment – June 15th, 2013

The Telegraph – Welcome back, Nick Robinson – Dominic Nutt – April 20th, 2015

The Telegraph – Can crowdfunding really cure cancer? – Alexander Masters – July 2nd, 2016

Financial Times – Vanity virus cures fund gap for medical research – Andrew Jack – March 11th, 2016

The Telegraph – It’s time to sell tickets for places on life-saving medical trials – Dominic Nutt – April 5th, 2016

The Carcinoid Cancer Foundation – Oncolytic virus Clinical Trial for NET Patients begins at UU – April 6th, 2016

SwissNET report (2016)

Journal of Medical Ethics – The Plutocratic Proposal – Alexander Masters and Dominic Nutt – June 6th, 2017

Net Patient Foundation – INCA – Unmet needs in the global NETs patient community – November 7th, 2017

www.liguecancer.ch
Informationen, Praktika, Sitzungen, Beratung und Unterstützung

www.lgc.ch
Ligue genevoise contre le cancer

www.chuv.ch
Département d’oncologie, Cancer neuroendocrinien

www.hug-ge.ch
Hôpital Universitaire de Genève – Centre des cancers – Programme des tumeurs de la thyroïde et des tumeurs neuro-endocrines

www.kofam.ch
the Federal Office of Public Health’s (FOPH) portal.

 

In Frankreich :

www.apted.fr
Association de Patients porteurs de tumeurs endocrines diverses.
(in french)

www.tne-infos.fr
Site destiné à offrir des informations utiles et interactives aux personnes atteintes de TNE ainsi qu’à leur entourage.
(in french)

 

In Kanada :

https://cnetscanada.org
The Carcinoid-NeuroEndocrine Tumour Society (CNETS) – Canada

 

und auch

ENETS

https://www.enets.org/
https://www.enets.org/coe_map.html
ENETS – Centers of Excellence

https://www.enets.org/net_nurse_group.html
ENETS – NET Nurses group

http://incalliance.org/
International Neuroendocrine Cancer Alliance: INCA