RESOURCES

Articles & websites

Here are some links to the most relevant articles and websites on NETs.

COVID-19 : Guidance for NETs patients:

Information on the coronavirus  – Universitätsspital Basel – April 2020

Information ressources for NET patients – INCA – International Neuroendocrine Cancer Alliance – April 2020

COVID-19 – Information and Ressources – Neuroendocrine Cancer Australia – 26 March 2020

Coronavirus disease – Outbreak  – Neuroendocrine Tumor Research Foundation – 27 March 2020

Coronavirus – Information page – AMEND – 26 March 2020

Advice on Coronavirus for people with cancer – Net Patient Foundation – March 2020

New coronavirus: People at especially high risk – Federal Office of Public Health FOPH – 20 March 2020

Cancer Research UK – coronavirus and cancer – Cancer and Coronavirus – March 2020

Quality of Life: NETs – Why this master of disguise needs careful handling – Cancer World – Autumn 2019

AdVince study in Uppsala: Searching for patients with neuroendocrine tumour disease (Word)

The Telegraph – A virus that kills cancer : the cure that’s waiting in the cold – Alexander Masters – August 31st, 2012

The Telegraph – Would I take an untested cancer treatment myself? Hell, yes! – Dominic Nutt – September 14th, 2012

The Telegraph – The cancer killer they won’t pay for – Alexander Masters – October 2nd, 2012

Financial Times – Scientists offer to name cancer drug for £1m – August 31, 2012

the Guardian – Two medical pioneers aim to trial a cancer-killing virus – Alexander Masters – January 4, 2013

Aeon Magazine – An iCure – Alexander Masters – March 27th, 2013

the Uppsala University – Donation enables clinical testing of new cancer treatment – June 15th, 2013

The Telegraph – Welcome back, Nick Robinson – Dominic Nutt – April 20th, 2015

The Telegraph – Can crowdfunding really cure cancer? – Alexander Masters – July 2nd, 2016

Financial Times – Vanity virus cures fund gap for medical research – Andrew Jack – March 11th, 2016

The Telegraph – It’s time to sell tickets for places on life-saving medical trials – Dominic Nutt – April 5th, 2016

The Carcinoid Cancer Foundation – Oncolytic virus Clinical Trial for NET Patients begins at UU – April 6th, 2016

www.swissnet.net
Swiss Registry for Neuroendocrine Tumors

SwissNET report (2016)

Journal of Medical Ethics – The Plutocratic Proposal – Alexander Masters and Dominic Nutt – June 6th, 2017

Net Patient Foundation – INCA – Unmet needs in the global NETs patient community – November 7th, 2017

www.liguecancer.ch
Information, internships, sessions, advice and support (also for employers, for employees, telephone or on-site coaching, training / workshops), brochures and materials (including rights and obligations in labor relations)

www.lgc.ch
Ligue genevoise contre le cancer

www.chuv.ch
Département d’oncologie, Cancer neuroendocrinien

www.hug-ge.ch
Hôpital Universitaire de Genève – Centre des cancers – Programme des tumeurs de la thyroïde et des tumeurs neuro-endocrines

www.kofam.ch
the Federal Office of Public Health’s (FOPH) portal.

 

In France :

www.apted.fr
Association de Patients porteurs de tumeurs endocrines diverses.
(in french)

www.tne-infos.fr
Site destiné à offrir des informations utiles et interactives aux personnes atteintes de TNE ainsi qu’à leur entourage.
(in french)

 

In Canada :

https://cnetscanada.org
The Carcinoid-NeuroEndocrine Tumour Society (CNETS) – Canada

 

and also

ENETS

https://www.enets.org/
https://www.enets.org/coe_map.html
ENETS – Centers of Excellence

https://www.enets.org/net_nurse_group.html
ENETS – NET Nurses group

http://incalliance.org/
International Neuroendocrine Cancer Alliance: INCA