Here is a non-exhaustive list of neuroendocrine tumour associations, organisations and foundations in Switzerland, France, Germany and the United Kingdom.
The Ligue contre le cancer website provides information on many types of cancer as well as general advice and support.
Swissnet is the Swiss registry for neuroendocrine tumours and brings together specialists from different disciplines.
Portal of the Federal Office of Public Health (OFSP) which lists clinical trials carried out in Switzerland
APPRENDRE À VIVRE AVEC LE CANCER
A European education and support programme available in the different regions of Switzerland
The Forum Cancer is a reliable platform for those wishing to gather information and chat on internet forums.
A national association of patients with various endocrine tumours.
Informative site created by Laboratoire IPSEN France.
RENATEN is the national reference network for the management of rare, sporadic and hereditary malignant neuroendocrine tumours.
National association of patients with multiple endocrine neoplasia type 1 or type 2,
NETZWERK NEUROENDOKRINE TUMOREN
The German patient association’s website with lots of content on NETs. The summary of clinical studies that are currently in progress may be particularly useful for some patients.
A platform where you can find more information, including support groups, events and online forums for people with NETs.
The Association for Multiple Endocrine Neoplasia Disorders
The international support website for NETs patients.