Information

Here is a non-exhaustive list of neuroendocrine tumour associations, organisations and foundations in Switzerland, France, Germany and the United Kingdom.

SWITZERLAND

LIGUE CONTRE LE CANCER

The Ligue contre le cancer website provides information on many types of cancer as well as general advice and support.

SWISSNET

Swissnet is the Swiss registry for neuroendocrine tumours and brings together specialists from different disciplines.

KOFAM

Portal of the Federal Office of Public Health (OFSP) which lists clinical trials carried out in Switzerland

APPRENDRE À VIVRE AVEC LE CANCER

A European education and support programme available in the different regions of Switzerland

FORUM CANCER

The Forum Cancer is a reliable platform for those wishing to gather information and chat on internet forums.

FRANCE

APTED

A national association of patients with various endocrine tumours.

TNEINFOS

Informative site created by Laboratoire IPSEN France.

RESEAU GTE

RENATEN is the national reference network for the management of rare, sporadic and hereditary malignant neuroendocrine tumours.

AFNEM

National association of patients with multiple endocrine neoplasia type 1 or type 2,

GERMANY

NETZWERK NEUROENDOKRINE TUMOREN

The German patient association’s website with lots of content on NETs. The summary of clinical studies that are currently in progress may be particularly useful for some patients.