blog

Discover below the different news related to the Foundation and its partners:

NET PATIENTS TELL THEIR STORIES

NET Cancer Day is held on November 10th to increase awareness of neuroendocrine cancers and to provide a voice to the NET community, asking for improved diagnostics, treatments, information, care and research. On this occasion, NET patients from across the globe tell their stories to raise awareness about the need

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THE ENETS-INCA CANCER DAY EDUCATIONAL WEBINAR

The ENETS-INCA NET Cancer Day Educational Webinar will take place on Thursday, 10 November from 12:00 to 14:15 CET. The event is designed to provide neuroendocrine cancer patients and caregivers with up-to-date information on issues of major interest, such as : disease terminology, treatment options and sequence, new treatments and future

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World NET Awareness Day 2020

10 November is World NET Awareness Day. On this day, in 2020, NET patients from around the world shared a photo documenting their journey to diagnosis. This movement was intended to highlight the challenges faced by patients and the medical profession in terms of diagnosis. The hashtag #LetsTalkAboutNETS is used

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The INCA Boot Camp for Research Advocates

From July 2020 to February 2021, the INCA Research Committee held its “Boot Camp”, with the first programme dedicated to NET patient advocates. The 8-month webinar was attended by 18 participants, including NET patients as well as patient advocates and spokespeople. Led by the Patvocates Network, the programme featured monthly

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WECAN Academy – Frankfurt 2019

The WECAN Academy training took place from 6 to 8 July 2019 in Frankfurt (Germany). The training was organised by WECAN, an informal network of leaders from cancer patient umbrella organisations, including INCA. The content and structure of the WECAN Academy builds on the work carried out by many patient

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7th INCA Global Patient Advocates Summit

June 2019 – 21 organisations from all over the world, who actively monitor and support patients with NETs, met in Plovdiv (Bulgaria) on 18 and 19 June during the 7th INCA summit for patient advocates. This annual event brings together the world’s leading patient advocates and medical experts in NETs

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ENETS – Barcelona

March 2019 – Once again, members of the Victory NET Foundation took part in the symposium organised by ENETS (European Neuroendocrine Tumour Society). This edition presented the latest news on research, trials and training to more than 1,600 participants from around the world.

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ENETS – Barcelona

March 2018 – Members of the Victory NET Foundation took part in the ENETS (European Neuroendocrine Tumour Society) symposium, which brought together more than 1,500 participants from all over the world. This event allowed members to learn about the latest developments in research, clinical trials and training.

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Extraordinary meeting in Uppsala

January 2018 – At the initiative of Alexander Masters and geared, in particular, towards the donor community, the main players in the fight against NETs met to take stock of progress with research and clinical trials.

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3 Peaks Challenge

July 2017 – The members of the Victory NET Foundation took part in the 3 Peaks Challenge – a charity challenge known for its difficulty where participants have to climb the highest peaks in England, Scotland and Wales within 24 hours. This challenge aimed to raise public awareness of NETs as

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