Category ActionEN

NET PATIENTS TELL THEIR STORIES

NET Cancer Day is held on November 10th to increase awareness of neuroendocrine cancers and to provide a voice to the NET community, asking for improved diagnostics, treatments, information, care and research. On this occasion, NET patients from across the…

World NET Awareness Day 2020

10 November is World NET Awareness Day. On this day, in 2020, NET patients from around the world shared a photo documenting their journey to diagnosis. This movement was intended to highlight the challenges faced by patients and the medical…

The INCA Boot Camp for Research Advocates

From July 2020 to February 2021, the INCA Research Committee held its “Boot Camp”, with the first programme dedicated to NET patient advocates. The 8-month webinar was attended by 18 participants, including NET patients as well as patient advocates and…

WECAN Academy – Frankfurt 2019

The WECAN Academy training took place from 6 to 8 July 2019 in Frankfurt (Germany). The training was organised by WECAN, an informal network of leaders from cancer patient umbrella organisations, including INCA. The content and structure of the WECAN…

ENETS – Barcelona

March 2019 – Once again, members of the Victory NET Foundation took part in the symposium organised by ENETS (European Neuroendocrine Tumour Society). This edition presented the latest news on research, trials and training to more than 1,600 participants from…

ENETS – Barcelona

March 2018 – Members of the Victory NET Foundation took part in the ENETS (European Neuroendocrine Tumour Society) symposium, which brought together more than 1,500 participants from all over the world. This event allowed members to learn about the latest…

Extraordinary meeting in Uppsala

January 2018 – At the initiative of Alexander Masters and geared, in particular, towards the donor community, the main players in the fight against NETs met to take stock of progress with research and clinical trials.

3 Peaks Challenge

July 2017 – The members of the Victory NET Foundation took part in the 3 Peaks Challenge – a charity challenge known for its difficulty where participants have to climb the highest peaks in England, Scotland and Wales within 24 hours.…